Previous Studies

Health Education For Latina Mothers Of Children With Intellectual And Developmental Disabilities

My research shows that Latina mothers caring for children with disabilities are in poor health and have high rates of depression; yet services are typically focused on the needs of the child and not on the needs of parental caregivers. We developed a health education intervention that is focused on Latina mothers of children with disabilities and is based on a promotora de salud (lay health educators) model.

Caring For Myself: African American Caregivers And Health

Similar to the findings for Latino mothers, African American mothers caring for children with developmental disabilities are also in poor health African American mothers who do not care for a child with a disability; yet services are typically focused on the needs of the child and not on the needs of parental caregivers. Building on the promotora de salud (community health advisor) model we developed for Latina mothers, we are working with Catholic Charities on adapting this model to support African American caregivers of children with developmental disabilities.

Addressing The Informational Needs Of Latino Immigrant Parents Of Children On The Autism Spectrum

One in 150 children is diagnosed with autism. With intensive, early intervention, many children escape the most serious outcomes associated with the diagnosis such as segregated educational settings, serious problem behavior such as aggression towards self or others, and lack of a means to communicate verbally with family and friends. Without intervention, these symptoms persist over time and lead to worsened child and family outcomes.

Cultural Equivalence Of Autism Assessment For Latino Children

This study to be funded by NICHD will examine the cultural equivalence of the Autism Diagnostic Interview Revised (ADI-R) for a US Latino population. We propose 3 aims: (1) to assess the reliability of the ADI-R Spanish version among Spanish speaking parents of children with autism and intellectual disabilities; (2) To investigate the validity of the ADI-R in a sample of Latino parents of children with autism and intellectual disabilities; and (3) To investigate the meaning and perceived severity of symptoms in relation to the norms of the participant’s family and culture.

Latino Families Of Children On The Autism Spectrum

The focus of this study is on understanding the experiences of Latino family members who have a child with an autism spectrum disorder (ASD). Autism is being diagnosed at increasing rates and services for children with autism are expanding. However, there is some evidence of disparities in rates of diagnosis and service utilization for Latino children as compared to non-Latino white children.

Latino Families of Adolescents and Adults with Autism: A Study of Family Caregiving

Family caregiving of persons with autism is an important, emerging area of study. Within this area of research, there is virtually no research on Latinos with autism and their families. Working with Marsha Seltzer, Jan Greenberg and Marty Krauss, I am supervising recruitment of a sample in Massachusetts of Latino families of adolescents and adults with autism. Some of the issues we will explore are the relationships of family and acculturation to caregiver well-being, parental beliefs about autism, and service utilization among this population.

Latino and African American Families of Adults with Mental Illness

This study is funded by NIMH and is designed to complement Dr. Greenberg and Seltzers’ study of families of adults with schizophrenia. This is the first longitudinal study designed to understand the needs of families of color in the context of a family member with a severe mental illness. In this study, we are examining issues unique to families of color in the context of having a family member with severe mental illness, and will be making comparisons across different contexts and groups. We will examine protective factors such as kinship networks, religiosity and other coping styles of families of color who have a member with severe mental illness in addition to the unique challenges they may face.

Study Reports

The Experiences of African American Families Coping with Mental Illness
Puerto Rican Families With Adult Children Who Have Disabilities: What Are Their Strengths And Needs?
Familias Puertorriqueñas Con Hijos Adultos Incapacitados: ¿Cuáles Son Sus Puntos Fuertes Y Sus Necesidades?
Shared Experiences of Latino Families of Adolescents and Adults with Autism
Las Experiencias Compartidas de Familias Latinas de Adolescentes y Adultos con Autism
The Experience of Latino Families Coping with Mental Illness
Las Experiencias de Familias Latinas Cómo enfrentar la Enfermedad Mental